RESOURCES AND INFO
 

Links to Other Organisations

Member Groups

Paediatric Cardiac Units

General

  • British Cardiac Society - BCS aims to support and represent all those working in the fields of cardiovascular care and research.
  • British Heart Foundation - BHF strive to play a leading role in the fight against disease of the heart and circulation.
  • Carers Direct -  A national information, advice and support service for carers in England. Available online and as a free, confidential helpline seven days a week on 0808 802 0202, it provides accurate, relevant information for carers and those who support them.
  • ChildcareLink -  A government service that provides information and advice on childcare. 
  • Children First For Health - Online guide to health and hospital life for young people, children and families with advice from Great Ormond Street Hospital.
  • Congenital Heart Disease Website - A website that sets out to give the parents and carers of children with congenital heart disease information to help them make important decisions about treatment.
  • Contact a Family - Detailed information and advice for families with disabled children.   
  • Directgov - A government site bringing together the widest range of public service information and services online.
  • Ebstein's Anomaly - A website providing information, research and parental support on the heart condition Ebsteins Anomaly.
  • Every Disabled Child Matters (EDCM) - EDCM is a campaign for disabled children and their families to have the right to the services and support they need to live ordinary lives. 
  • GO-CHD Study - This is a research group in Oxford led by Professor Shoumo Bhattacharya who are trying to find out the causes of congenital heart conditions.
  • Gransnet - The new social networking site from Mumsnet for the UK's 14 million grandparents.  Includes an approachable health guide.
  • IPSEA (Independent Panel for Special Educational Advice) - National charity that helps to ensure children receive the special educational provision appropriate to their needs and to which they are entitled in law.
  • Mumsnet Health Guide - A selection of useful health links from the nation's preeminant website produced by parents for parents.
  • NHS Evidence - Child Health - Use the search facility to find articles relating to congenital heart conditions.
  • NHS Choices - Find information about Congenital heart disease from NHS Choices, including causes, prevention and treatment.
  • Tiny Tickers - An organisation concerned with improving the detection of congenital heart disease before birth, by raising awareness and training healthcare professionals in NHS hospitals in the UK.


International Organisations