Links to Other Organisations
Member Groups
Paediatric Cardiac Units
General
- British Cardiac Society - BCS aims to support and represent all those working in the fields of cardiovascular care and research.
- British Heart Foundation - BHF strive to play a leading role in the fight against disease of the heart and circulation.
- Carers Direct - A national information, advice and support service for carers in England. Available online and as a free, confidential helpline seven days a week on 0808 802 0202, it provides accurate, relevant information for carers and those who support them.
- ChildcareLink - A government service that provides information and advice on childcare.
- Children First For Health - Online guide to health and hospital life for young people, children and families with advice from Great Ormond Street Hospital.
- Congenital Heart Disease Website - A website that sets out to give the parents and carers of children with congenital heart disease information to help them make important decisions about treatment.
- Contact a Family - Detailed information and advice for families with disabled children.
- Directgov - A government site bringing together the widest range of public service information and services online.
- Ebstein's Anomaly - A website providing information, research and parental support on the heart condition Ebsteins Anomaly.
- Every Disabled Child Matters (EDCM) - EDCM is a campaign for disabled children and their families to have the right to the services and support they need to live ordinary lives.
- GO-CHD Study - This is a research group in Oxford led by Professor Shoumo Bhattacharya who are trying to find out the causes of congenital heart conditions.
- Gransnet - The new social networking site from Mumsnet for the UK's 14 million grandparents. Includes an approachable health guide.
- IPSEA (Independent Panel for Special Educational Advice) - National charity that helps to ensure children receive the special educational provision appropriate to their needs and to which they are entitled in law.
- Mumsnet Health Guide - A selection of useful health links from the nation's preeminant website produced by parents for parents.
- NHS Evidence - Child Health - Use the search facility to find articles relating to congenital heart conditions.
- NHS Choices - Find information about Congenital heart disease from NHS Choices, including causes, prevention and treatment.
- Tiny Tickers - An organisation concerned with improving the detection of congenital heart disease before birth, by raising awareness and training healthcare professionals in NHS hospitals in the UK.
International Organisations
- Adult Congenital Heart Association - Supporting adults with congenital heart defects.
- Canadian Adult Congenital Heart Network - The CACH Network was created to pool the knowledge and experience of congenital heart disease professionals in Canada to help strengthen their skills and knowledge of the discipline.Canadian Congenital Heart Alliance - A registered charitable organization made up of patients with a congenital heart defect, their friends, families, and the medical community.
- Cincinnati Children's Hospital - Heart Centre Encyclopedia - The Heart Institute Encyclopedia has been compiled to provide easily accessible information on cardiac diseases, defects, disorders, and problems that may affect a child's heart.
- Congenital Heart Information Network - provides information, support services, financial assistance and resources to families of children with congenital heart defects and acquired heart disease.











