We care about your Transition experience. We want to help make it as smooth and comfortable, informative and happy as possible. We would really appreciate your time in answering questions honestly about your experiences, so we can help make things better in the the future.
All answers will be confidential. If you have any questions please contact us.
Personal Information
Name
Date of Birth
Street Address
Town/City
County
Country
Postcode
Email Address
Telephone Number
You and Transition
What do you understand the transition process to be?
If you have been through the transition process, How did you feel about it?
Share how you felt about the transition process:
If you have not yet gone through transition, how do you feel about going through the process in the future?
Share your thoughts and feelings about a future transition:
Who has advised you about a future transition or advised you during a past transition:
Do you feel happy that there is enough information about what will happen to you and your medical care once you make the transition to an adult unit in hospital?
How happy do you feel about going through transition and being treated in an adult hospital?
What would have to change to make you feel more positive about about your transition?
You and your appointments
Do you normally speak with your cardiologist yourself when you go to your appointments? How do you feel about these conversations?
How would you feel if you were to have an appointment without your parents and had to talk to your doctor about your condition on your own?
Your heart and growing up
If you had to pick three issues that affect you as a teenager with a heart condition, what would you pick?
Who do you currently speak to about these issues (if anyone)?
How can brighthearts address these areas? (eg fact sheets/events/meeting others/helpline?)
Do you feel it would be useful to speak to other young people with heart conditions? If so, why?
You and brighthearts
What information and support about the transition process and your heart health do you want to get from brighthearts?
How would you like brighthearts to deliver this information and support to you?
Are there any topics or subjects to do with your heart health or transition would you like to discuss but don’t feel you can with your parents/doctors?
What age range should brighthearts attempt to reach?
In addition to heart health support, what you would like from brighthearts?
Is a newsletter important to you?
Would you be interested in writing a blog or some of the newsletter?
Is it important to meet other members face to face?
Why is being a member of brighthearts different from other youth groups?
Tell us your three top priorities that you would like brighthearts to be focusing on:
